Category: Medications

It feels like forever since I’ve posted.  I guess that’s a good thing because it means that I’ve been busy, busy with my kids home from school on break as well as the fact that nothing really exciting has been going on around here.  Yes, there was Christmas and the kids had a blast with their Aunt Sarah and Rhonda hanging around entertaining them all weekend, but no news is always good news, right?

In Julia’s CF world, she appears to be very well.  She did catch a cough/cold that Olivia brought home from school.  It was/is a wet heavy cough, so that resulted in a round of Azithromycin as well as an order to add a morning round of Hypertonic Saline and to start a round of TOBI asap.  So, Julia and I are in the treatment chair two hours a day for a while.  She still has a cough, but it seems to be slowly clearing up.  Since Julia is now older she can communicate just about anything, so according to Julia, she doesn’t like Hypertonic Saline because it makes her cough.  Amen sister…it does make her cough (that’s what I like about it).  She does likes Pulmozyme and TOBI!  Since it is winter, and we’re trapped inside most of the time, it seems easier to get treatments done.  That or I’m just really starting to get used to all of this…never thought I see the day.

With the New Year fast approaching, there are a few things I’d like to share or invite you to join me in.  The first event is called Out Run CF.  Out Run CF is actually a half marathon and 5 K put on by the Rock CF Foundation and actually takes place in Michigan.  Emily Shaller is the master mind behind this event.  She is a woman who not only has CF, but is an avid runner and drummer.  Another woman, Mandi Sharpe, wife of fibro Ronnie Sharpe, has put together a virtual version of Out Run CF for those of us who’d like to participate, but can’t travel to Michigan.  So, here’s what you do.  Click on the image/link below and register on-line for the Out Run CF virtual run.  It only costs you $20 and you get a t-shirt.  You decide how much you want to run and on March 20th, you just do it.

Click to register for Out Run CF

I’d love some company!  I will be doing a half-marathon and since this is Utah and March 20th is a Sunday, if any of you have a problem with this, we can do it on Saturday, March 19th instead.  Please, please don’t make me go out and run all alone!  Send me a message and let me know if you’re in.  I know there are tons of people out there who can do this.  There’s plenty of time to get ready, so just go and get registered.  If nothing else motivates you, just think…it’s for CF…the money goes to CF.

I also need some partners in crime to run the Salt Lake City Marathon.  I signed up yesterday and I have no idea what I’m doing.  Help!  I do know that my goal is to do it with a twist to also raise some money for the Cystic Fibrosis Foundation.  More details will follow as I get my ideas finalized.  Again, I don’t want to do it alone…it’d be nice to have at least a partner or even better…partners.  Let me know if you’re in and get signed up asap.  Costs go up after January 31st.  I signed up for the early start at 6:00 AM.  I have no idea how long it’s going to take me, but since I’ve never done this before, I knew I’d need an early start to hopefully finish by noon at the latest.  To sign up for the Salt Lake City Marathon, click on the image/link below and join me in a jolly good time!

Click to register for the Salt Lake Marathon

I’ll just leave you with a few pictures of gram cracker houses…a Christmas tradition in the Mills family…

Austin was so proud...he actually dropped it on the floor shortly after this picture, shattering it into hundreds of pieces. Process not product right?

Dad and Olivia worked together to create this masterpiece...

Julia and I worked on this one. I had to cheat and use a hot glue gun for the structure because Julia kept putting candy on it before it was ready and it kept collapsing. We're such cheaters!

Another chance to join this CF warrior and Out Run CF...click on Julia to register.