Category: Great Strides
Gardening CF style
She's such a good sport.
I’m not sure exactly where I’m going with this post, but I feel a strong need to get some words out. Julia is one smart little cookie and she is getting to the point in her life where she knows things. One thing she is realizing is that she’s just like all the other kids in most regards, but there are things about her that make her just a bit different. Julia has cystic fibrosis…she knows it…we all know it. But, Julia has decided that she doesn’t want to have CF anymore. As a parent…what are you supposed to do with that one?
Treatments are beginning to get a bit more challenging. Julia doesn’t want to do treatments. If you saw your big brother and big sister never doing any treatments, would you want to do them? I sure wouldn’t. I find myself saying, “It doesn’t matter if you want to do them or not.” As well as, “Do you want to do this the easy way or the hard way?” Julia knows that treatments are going to happen no matter what, but I don’t think that’s going to stop her from trying to be just like everyone else.
I explained to Julia that scientists are trying to develop a pill for people with CF so they won’t have to do so many treatments. Julia keeps asking me when the pill will be ready so that she won’t have to do lots of treatments. I wish I had an answer for her. That breaks my heart.
Please join us on May 19th for the Great Strides walk to benefit cystic fibrosis. I think now, more than ever, we need a pill…a cure so Julia and all people with CF won’t have to do so many treatments. Go to www.cff.org/Great_Strides/JannaMills and donate today!
It has been way too long! I thought I’d give you all a short update on our April activities.
We had a week off for spring break and it should have been a week of rest, but I had many painting projects planned for the week. The first project…fireplace face lift.
Before
My little "helpers"
After
Second painting project…bathroom facelift.
My "helpers" hard at work again...before...gray/blue color...I mean, what goes with bright blue tile and a salmon/pink colored sink and tub?
Melted Butter Yellow of course!
I just love how warm it feels!
To try to combat all of the fighting over the ballerina towel (Austin not included), I hung individual towel hooks for each child and made them a special hooded towel. So far so good! I just need to get their names put up over their hook.
And after all of our hard work, Easter Sunday fun!
Julia, Austin, and Olivia...thanks Grandma Kamper for the wonderful outfits!
Three happy kids on Easter morning!
Even a big nine-year-old likes to hunt for eggs.
Run Olivia!
Go Julia!
April has been a busy month. Austin has started baseball. Julia and Olivia have started gymnastics. Joe has started softball. Me…I haven’t started anything, but I’m getting geared up to start back up at Westminster next month to finish my master’s degree. I’m wrapping up a school year and planning a baby shower for my sister.
I also want you all to join us at Great Strides this year. It is on Saturday, May 19th at 9:00 AM at the Energy Solutions Arena. Let me know if you want to join our team. Please visit www.cff.org/Great_Strides/JannaMills for more information. We’d love to see some more people come out and support Julia’s Warriors.
Enjoy this year’s Great Strides video!
This post comes a week late, but I wanted to let you all know that Julia’s Warriors raised $1315.00 for the Cystic Fibrosis Foundation this year. I couldn’t be happier about this. Unlike today, we had perfect weather for the walk. Congratulations to Shauna Hatch and Kristy Millet for winning a $25 gift certificate to the Paul Mitchell School…we had one last round of prizes to hand out for our donation drawing. I’ll be getting your prize in the mail this week. I’ve been struggling to tie up loose ends this past week. I finished a very intense class with multiple presentations and I could hardly catch my breath. We look forward to raising more money next year!
Julia taking a little break.
Olivia and Julia
The family and my sisters
Our family and the Beach family
The kids made silly hats and Home Depot wooden crafts.
Austin's many crafts
If you have interest in joining us next year, we’d love to have more company on the walk. The kids always have a great time.
Please join us in our fight against cystic fibrosis.